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Resource Guide for Chromosomal Abnormalities

Revision Information

  • Reviewer: Kari Kassir, MD
  • Review Date: 02/2016 -
  • Update Date: 05/20/2015 -
  • Address:

    4301 Connecticut Avenue, NW, Suite 404

    Washington, DC 20008

  • Phone:

    1-202-966-5557

  • Internet address:

    http://www.geneticalliance.org

  • Description of services provided:

    The Genetic Alliance offers information on genetic disorders and the impact of the diagnosis on individuals and families. From the main page, you can search conditions, organizations, and resources.

  • Address:

    PO Box 872

    Pine, CO 80470-0872

  • Phone:

    1-888-999-9428

  • Internet address:

    http://www.genetic.org

  • Description of services provided:

    This website provides support services, a newsletter, and information about sex chromosome variations.

  • Address:

    1275 Mamaroneck Avenue

    White Plains, NY 10605

  • Internet address:

    http://www.marchofdimes.org

  • Description of services provided:

    The March of Dimes provides information on pregnancy and birth defects and gives referrals.

  • Address:

    666 Broadway, 8th floor

    New York NY, 10012

  • Phone:

    1-800-221-4602

  • Internet address:

    http://www.ndss.org

  • Description of services provided:

    The National Down Syndrome Society provides information on genetic disorders and listings of genetic counseling services.

  • Address:

    330 North Wabash Avenue, Suite 2000

    Chicago, IL 60611

  • Phone:

    1-312-321-6834

  • Internet address:

    http://www.nsgc.org

  • Description of services provided:

    On the National Society of Genetic Counselors website, you can learn more about genetic disorders and find a list of genetic counseling services.

  • Address:

    2982 South Union St.

    Rochester NY, 14624

  • Phone:

    1-800-716-7638

  • Internet address:

    http://www.trisomy.org

  • Description of services provided:

    This nonprofit volunteer organization is a network of families and professionals who are dedicated to offering support to those affected by Trisomy 18, 13, and related chromosomal disorders. You'll find a resource center with fact sheets, a bookstore, membership information, and upcoming events.

  • Address:

    11250 West Road, Suite G

    Houston TX, 77065

  • Phone:

    1-800-365-9944

  • Internet address:

    http://www.turnersyndrome.org

  • Description of services provided:

    The Turner Syndrome Society creates awareness, promotes research, and provides support for all those affected by this condition.

  • Address:

    P.O. Box 268

    Lakewood CA, 90714

  • Phone:

    1-888-970-0777

  • Internet address:

    http://www.fivepminus.org

  • Description of services provided:

    This society encourages and facilitates communication among families affected by 5p syndrome by raising awareness and providing information.